Friday the 13th... The Lewy files
We should have known something was amiss... we'd received word that there would be someone visiting my LO (loved one) today with reference to the hallucinations... frequency and subject matter and how we calm them. So, we were under the impression it would be the new Psychiatric doctor coming out to introduce him/herself ... but no what we were met with instead was a Student from the university wanting to take notes/and record how things are... all with the view of helping students to learn. Somewhere down the line the communication lines were crossed because there is no way we would have agreed to this... more so this past week considering the hospital run on the 9th of July.
We and listened to this young girl ... none of us wanting her to be there and whilst I felt sorry for her and for her time being wasted, I was also so bloody angry .. Lewy body dementia is a hard enough road to traverse without some student who hasn't the confidence to engage you without apologising 50 million times (slight exaggeration) but jeez every other word was sorry.. which only pissed me off further. of course the heat didn't help.
But as soon as she said.. "we HAVE to record this for future students to learn from" I said WHOA... no you don't, if you want to record it you may record by hand but you're not voice recording this at all... it was on the tip of my tongue but I held back when what I wanted to tell her was, ASK permission don't tell us we have to let you record us. She blew it with that last part about having to record us and the whole weak ass approach to interviewing.
I only hope that she greatly improves over time... but sorry honey we're not your learning ground, not today, we've all been through enough crap this week without holding your hand whilst you're wanting to subject us to a 2 hour interview.... not bloody likely!
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